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Journal Articles

Investigating 'No Shows' at a Hospital-Based Pediatric Sickle Cell Disease Clinic

Nicole Ivette Bohnker, MPH, Kay Linn Saving, MD

Blood (2019) 134 (Supplement_1): 1032.

https://doi.org/10.1182/blood-2019-121345

Published: 2019

Journal Articles

Comparison of Lost Productivity Due to Eculizumab and Ravulizumab Treatments for Paroxysmal Nocturnal Hemoglobinuria in France, Germany, Italy, Russia, Spain, the United Kingdom, and the United States

Adrian R Levy, Laura Dysart, Yogesh Patel, Andrew Briggs, DPhil, John Schneider, Karl-Johan Myren, MSc, Ioannis Tomazos, PhD MBA

Blood (2019) 134 (Supplement_1): 4803.

https://doi.org/10.1182/blood-2019-127443

Published: 2019

Journal Articles

Patient-Reported Outcome Measures (PROMs) in Pediatric Non-Malignant Hematology: A Systematic Review

Robert J Klaassen, MD FRCPC, Julia Y. Kinahan, MDcal Student, Johann M. I. Graham, MDcal Student, Yamilée V. Hébert, MDcal Student, Katie O'Hearn, MSc Human Kinetics

Blood (2019) 134 (Supplement_1): 2180.

https://doi.org/10.1182/blood-2019-127248

Published: 2019

Journal Articles

Feasibility of Outpatient High Dose Cytarabine in Patients with Acute Myeloid Leukemia

Chin-Hin NG, MD MRCP, FRCPATH, MCI, Xiaojuan Chen, BsN, MsN, Foong-Gwan Lee, BsN, Shi Hui Clarice Choong, MBBS, MRCP, Xiao-Shi Saw, BSc(Pharm), Lon-Wann Sai, MBBS, MRCP, Michelle Poon, MBBS, MRCP, FRCPATH, Hian Li Esther Hian Li Chan, MBBS, MRCP, FRCPATH, Melissa Ooi, MB BCh, BAO, MRCP(I), FRCPath, PhD, Yen Lin Chee, MBBS, FRCPATH, PhD, Yee Mei Lee, BsN, MsN, PhD

Blood (2019) 134 (Supplement_1): 2152.

https://doi.org/10.1182/blood-2019-129858

Published: 2019

Journal Articles

Patients' and Caregivers' Preferences for Different Hemophilia a Treatment Attributes

Namita Joshi, PhD MS, BPharm, Xinyi Ng, Marc Botteman, MS, MA, Nanxin Li, Rachel Shah, BS, Nisha Jain, Nicole Lyn, Jun Su

Blood (2019) 134 (Supplement_1): 2122.

https://doi.org/10.1182/blood-2019-126774

Published: 2019

Journal Articles

The Development of Ironchild: A Web-Based Intervention to Improve Adherence in Children with Iron Deficiency Anemia

Jacquelyn M. Powers, MD,MSc, Deborah I Thompson, PhD

Blood (2019) 134 (Supplement_1): 2163.

https://doi.org/10.1182/blood-2019-124181

Published: 2019

Journal Articles

On-Line Patient Portal Use By Caregivers in Pediatric Oncology: Are We Widening Sociodemographic Disparities?

Corinna L Schultz, MD, Suzanne M McCahan, PhD, H. Timothy Bunnell, PhD, Fang Fang Chen, PhD, Melissa A Alderfer, PhD

Blood (2019) 134 (Supplement_1): 2131.

https://doi.org/10.1182/blood-2019-131543

Published: 2019

Journal Articles

Shared Decision Making in Cancer Treatment: Findings from a Large Survey of Lymphoma (LYM) Patients and Survivors

Kendall H Sullivan, PharmD, Michael Toscani, PharmD, Tayla Poretta, PharmD, Ciera Patzke, PharmD, BCOP, Thushara Korattyil, PharmD, Denalee O'Malley, PhD MSW, Victor Gonzalez, MA, MS, Joseph Barone, PharmD, Andrew M. Evens, DO,MSc

Blood (2019) 134 (Supplement_1): 2134.

https://doi.org/10.1182/blood-2019-123459

Published: 2019

Journal Articles

Risk Factors for Increased Length of Stay (LOS) in Patients with Hematological Malignancies Electively Admitted for Chemotherapy

Christopher E. Wee, MD, Jilan Kubusek, PharmD, Irbaz Riaz, MDMMSc, Robert Wolf, PharmD, RPh, Julian R Molina, MD PhD, Naseema Gangat, MBBS

Blood (2019) 134 (Supplement_1): 2138.

https://doi.org/10.1182/blood-2019-127367

Published: 2019

Journal Articles

Case Management Featuring Community Health Workers Reduces Inpatient Health Care Utilization in Adults with Sickle Cell Disease

Wally R Smith, MD, Daniel Sop, BS,MS, Shirley Johnson, BA, LSW, Thokozeni Lipato, MD, Mica Ferlis, ANP, Caitlin Mcmanus, ANP, Margaret Guy, MD, Sarah Hartigan, MD, Emily Holt, BS, Chantal McHenry, BS, John D. Roberts, MD

Blood (2019) 134 (Supplement_1): 2104.

https://doi.org/10.1182/blood-2019-130441

Published: 2019

Journal Articles

The Effect of "Pathway" to Diagnosis for Childhood ITP on Caregiver Quality of Life at Time of Diagnosis

Michelle Neier, MD, Michele P. Lambert, MD, Rachael F. Grace, MD, Kerry Hege, MD, Stephanie Chiu, MPH, Julianne Thompson, Robert J Klaassen, MD FRCPC

Blood (2019) 134 (Supplement_1): 2174.

https://doi.org/10.1182/blood-2019-125686

Published: 2019

Journal Articles

Advancing Healthcare Outcomes for Sickle Cell Disease in Nigeria Using Mobile Health Tools

Arwa Fraiwan, PhD, Muhammad Noman Hasan, MS, Ran An, PhD, Amy J. Rezac, Nicholas J. Kocmich, Tolulope Oginni, BS, Grace Mfon Olanipekun, Fatimah Hassan-Hanga, MD, Binta W. Jibir, MBBS MPH, Safiya Gambo, MBBS, Priyaleela Thota, MD, Stephen K. Obaro, MD PhD, Umut A. Gurkan, PhD

Blood (2019) 134 (Supplement_1): 2173.

https://doi.org/10.1182/blood-2019-131344

Published: 2019

Journal Articles

Routine Management, Healthcare Resource Use and Patient/Caregiver-Reported Outcomes of Patients with Transfusion-Dependent β-Thalassaemia in the United Kingdom: A Mixed Methods Observational Study

Farrukh Shah, MDMBBS,FRCPath, Paul Telfer, DM, FRCP, Mark Velangi, Shivan Pancham, Robert Wynn, Sally Pollard, Elizabeth Chalmers, Jonathan Kell, MD, Joe Hickey, PhD, Clark Paramore, MPH, Minesh Jobanputra, MD, Kate Ryan, MD

Blood (2019) 134 (Supplement_1): 3550.

https://doi.org/10.1182/blood-2019-129930

Published: 2019

Journal Articles

A Systematic Literature Review of the Burden of Ischemic Priapism in Patients with Sickle Cell Disease

Dave Nellesen, PhD, Sedge Lucas, BA, Che-Rung Liu, MA., Menaka Bhor, PhD, Jincy Paulose, MD, Arthur Burnett, MD MBA

Blood (2019) 134 (Supplement_1): 3467.

https://doi.org/10.1182/blood-2019-128951

Published: 2019

Journal Articles

Disparities in Barriers and Facilitators of Acute Leukemia Diagnosis in Young Patients

Lucky Ding, BA, Ashley E Martin, MPH, Emma Canepa, MS, Erica Evans, MD, Richard Aplenc, MD PhD, Julia E Szymczak, PhD, Galen Joseph, PhD, Lena E. Winestone, MD MSHP

Blood (2019) 134 (Supplement_1): 3415.

https://doi.org/10.1182/blood-2019-124236

Published: 2019

Journal Articles

Quality of Life and Patient Reported Outcomes in Severe Chronic Neutropenia

Thomas F. Michniacki, MD, Lauren E. Merz, MDMSc, Harlan McCaffrey, MA MS, James A. Connelly, MD, Kelly J. Walkovich, MD

Blood (2019) 134 (Supplement_1): 3449.

https://doi.org/10.1182/blood-2019-126808

Published: 2019

Journal Articles

Disease Burden in Patients with Glanzmann Thrombasthenia: Perspectives from the Glanzmann Thrombasthenia Patient/Caregiver Questionnaire

Alexander Duncan, MD, Angela Kellum, PharmD, Shilpa Jain, Skye Peltier, Helen Smith, David Cooper, Hossam Saad

Blood (2019) 134 (Supplement_1): 3456.

https://doi.org/10.1182/blood-2019-128408

Published: 2019

Journal Articles

Patient Reported Outcomes (PROs) Show Superior Quality of Life (QOL) of Patients with Chronic Myeloid Leukemia (CML) Treated with First Compared to Newer Generations of Tyrosine Kinase Inhibitors (TKIs)

Adi Shacham, MD, Lena Rosenman, Avi Leader, MD, Giora Sharf, Pia Raanani, MD, Uri Rozovski, MD

Blood (2019) 134 (Supplement_1): 4781.

https://doi.org/10.1182/blood-2019-129806

Published: 2019

Journal Articles

How Caring for Toddlers and Young Children with Severe Haemophilia Impacts on Caregiver's Burden

Susan Halimeh, MD, Manuela Siebert, Sylvia Von Mackensen

Blood (2019) 134 (Supplement_1): 3461.

https://doi.org/10.1182/blood-2019-131185

Published: 2019

Journal Articles

Health Literacy, Self-Efficacy and Knowledge of Sickle Cell Disease Among Caregivers

Maite E. Houwing, MD, Rowena Grohssteiner, BSc, Sonja A.M.C. Teuben, Jan A Hazelzet, MD PhD, Anne P.J. de Pagter, MD PhD, Mirjam P. Fransen, Marjon H. Cnossen, MD PhD

Blood (2019) 134 (Supplement_1): 4841.

https://doi.org/10.1182/blood-2019-129888

Published: 2019

NARROW

Investigating 'No Shows' at a Hospital-Based Pediatric Sickle Cell Disease Clinic

Comparison of Lost Productivity Due to Eculizumab and Ravulizumab Treatments for Paroxysmal Nocturnal Hemoglobinuria in France, Germany, Italy, Russia, Spain, the United Kingdom, and the United States

Patient-Reported Outcome Measures (PROMs) in Pediatric Non-Malignant Hematology: A Systematic Review

Feasibility of Outpatient High Dose Cytarabine in Patients with Acute Myeloid Leukemia

Patients' and Caregivers' Preferences for Different Hemophilia a Treatment Attributes

The Development of Ironchild: A Web-Based Intervention to Improve Adherence in Children with Iron Deficiency Anemia

On-Line Patient Portal Use By Caregivers in Pediatric Oncology: Are We Widening Sociodemographic Disparities?

Shared Decision Making in Cancer Treatment: Findings from a Large Survey of Lymphoma (LYM) Patients and Survivors

Risk Factors for Increased Length of Stay (LOS) in Patients with Hematological Malignancies Electively Admitted for Chemotherapy

Case Management Featuring Community Health Workers Reduces Inpatient Health Care Utilization in Adults with Sickle Cell Disease

The Effect of "Pathway" to Diagnosis for Childhood ITP on Caregiver Quality of Life at Time of Diagnosis

Advancing Healthcare Outcomes for Sickle Cell Disease in Nigeria Using Mobile Health Tools

Routine Management, Healthcare Resource Use and Patient/Caregiver-Reported Outcomes of Patients with Transfusion-Dependent β-Thalassaemia in the United Kingdom: A Mixed Methods Observational Study

A Systematic Literature Review of the Burden of Ischemic Priapism in Patients with Sickle Cell Disease

Disparities in Barriers and Facilitators of Acute Leukemia Diagnosis in Young Patients

Quality of Life and Patient Reported Outcomes in Severe Chronic Neutropenia

Disease Burden in Patients with Glanzmann Thrombasthenia: Perspectives from the Glanzmann Thrombasthenia Patient/Caregiver Questionnaire

Patient Reported Outcomes (PROs) Show Superior Quality of Life (QOL) of Patients with Chronic Myeloid Leukemia (CML) Treated with First Compared to Newer Generations of Tyrosine Kinase Inhibitors (TKIs)

How Caring for Toddlers and Young Children with Severe Haemophilia Impacts on Caregiver's Burden

Health Literacy, Self-Efficacy and Knowledge of Sickle Cell Disease Among Caregivers

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American Society of Hematology

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ASH Publications

American Society of Hematology

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